Unscheduled Maintenance and Rest

Various antique spoons scattered on a white background
Photo by Joanna Kosinska / Unsplash

Being chronically ill, it's sometimes required to rest. Being chronically ill, your body sometimes schedules rest and maintenance for unexpected times. Such has been the way since I last wrote.
Don't get me wrong, I've been trying to write, but I just haven't been succeeding. This blog post will more than likely be a life update, rather than anything ground-breaking.

Maintenance, self care and rest
I often refer to self care as maintenance as it makes it sound more required than "self care", which has been taken over by the beauty industry and gutted of all original intent.
My maintenance periods have been getting longer over the past few months, a lot has been going on and I am exhausted.

Recovering from sleep exhaustion
Conversely, I got a CPAP on the 10th of October and have since been using it, my energy levels-- which many doctors said they could do nothing about-- are recovering steadily. It turns out that my sleep wasn't fucked because of fibromyalgia, but because I stopped breathing in my sleep. Who could've guessed?

I now wake up ready to face the day, which is amazing. I've never felt less tired since I was hit by the disability stick.
Of course, I still have a shorter candle than most folks, but I feel a lot more rejuvenated than I otherwise would have.

Hickam's dictum
A man can have as many illnesses as he damn well pleases, as the saying often goes, and I sure do. I'm going through more diagnoses for many issues, which are affecting my life in a lot of ways. There's a chance I could have celiac, for example, which I don't like to think about as I love gluten.
As a man can have as many illnesses as he pleases, I worry about whether there are more illnesses causing my symptoms than originally thought. It feels like every couple years I go through the dance of being diagnosed with a new illness.

In addendum
Often, I feel at odds with my body. Like my body is a foreign entity I just happen to be controlling and taking care of, that I didn't sign up for. I don't think anyone signs up for disability, but the disability community makes the hurt a little less- having so much in common with such amazing disabled people.
I have learned that the only thing you can do when you're chronically ill is schedule time to rest ahead of time, lest your body schedule it at inopportune moments for you.